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Global ALS/MND "big data" collaboration environment in a post-PRO-ACT era

Published on Jul 21, 2017895 Views

Platforms for global large-scale phenotyping allow investigators to collaboratively share clinical datasets, develop disease progression models and identify disease sub-populations and link clinical

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Chapter list

BIG Data, Collaborations and Patient Centricity in Rare Diseases00:00
Overview - 100:24
PRO-ACT Platform01:54
PRO-ACT Platform: Data - 103:48
PRO-ACT Platform: Data - 204:17
Overview - 205:12
PRO-ACE™07:22
NeuroBANK™ Platform - 107:38
NeuroBANK™ Platform - 208:19
NeuroBANK™ Platform - 309:04
NeuroBANK™ ALS Core Studies10:01
NeuroBANK™ ALS Ecosystem - 110:43
NeuroBANK™ Nat. Hx Studies - 112:15
NeuroBANK™ Nat. Hx Studies - 213:55
NeuroBANK Biorepository Label - 114:37
NeuroBANK Biorepository Label - 214:42
Age of Precision Medicine14:45
NeuroBANK™ ALS Ecosystem - 214:47
Overview - 314:57
ALS CORE (Community Online Research Engagement) - 114:59
ALS CORE (Community Online Research Engagement) - 215:22
ALS CORE (Community Online Research Engagement) - 315:30
ALS CORE (Community Online Research Engagement) - 415:33
ALS CORE (Community Online Research Engagement) - 515:34
ALS CORE (Community Online Research Engagement) - 615:38
ALS CORE (Community Online Research Engagement) - 715:38
ALS CORE (Community Online Research Engagement) - 815:39
ALS CORE (Community Online Research Engagement) - 915:40
ALS CORE (Community Online Research Engagement) - 1015:43
ALS CORE (Community Online Research Engagement) - 1115:45
ALS CORE (Community Online Research Engagement) - 1215:47
ALS CORE (Community Online Research Engagement) - 1315:50
ALS CORE (Community Online Research Engagement) - 1415:51
ALS CORE (Community Online Research Engagement) - 1515:51
ALS CORE (Community Online Research Engagement) - 1615:52
ALS CORE (Community Online Research Engagement) - 1715:53
ALS CORE (Community Online Research Engagement) - 1815:55
NeuroTRACKER - 116:13
NeuroTRACKER - 216:15
NeuroTRACKER - 316:15
NeuroTRACKER - 416:28
NeuroTRACKER - 516:29
NeuroTRACKER - 616:29
NeuroTRACKER - 16:30
Overview - 416:46
Overview - 516:50
Bright Future of International Collaboration17:00
Collaborators & Sponsors18:18