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Legal and ethical issues: Consent, Anonymisation, Access Regulation
Published on Aug 25, 20151452 Views
Related categories
Chapter list
Legal and ethical issues00:00
Options for sharing research data that may contain confidential information00:08
Consent across the data life cycle02:14
A good information sheet & consent form03:23
Timing of consent04:24
Form of consent11:03
Aspects to consider12:07
Medical research and biobanks14:06
Special cases of consent14:40
Do participants consent to share data with other researchers in future ?16:07
In practice - 117:14
In practice - 218:00
In practice - 318:25
Anonymising research data19:02
Anonymising qualitative data21:34
In practice - 423:15
In practice - 525:25
Managing access to data25:59
Can such research data be open ?32:32
Open about data with restricted access33:21
In practice - 633:29
In practice - 733:34
In practice - 833:41
In practice - 933:49
In practice - 1034:02
Questions35:50