0.25
0.5
0.75
1.25
1.5
1.75
2
Managing and sharing research data: consent, confidentiality and disclosure
Published on 2015-01-301420 Views
When individuals are a subject of research it is important to be familiar with legal and ethical obligations related to personal information. Special attention should be paid to the consent for partic
Related categories
Presentation
Preparing research data for open access00:00
Managing and sharing research data: consent, confidentiality and disclosure00:01
Overview02:33
Research with people as participants03:02
Ethical obligations and data sharing06:45
Ethical arguments for archiving data08:38
Options for sharing research data that may contain confidential information 12:09
Consent across the data life cycle16:05
A good information sheet & consent form17:23
When to ask for consent18:09
Right to withdraw from research20:08
Format for consent20:59
Types of material and consent22:23
Special cases of consent23:03
Informed consent for unknown future uses ?25:03
Do participants consent to share data with other researchers in future ?27:23
In practice: wording in consent form / information sheet - 130:43
In practice: wording in consent form / information sheet - 231:42
In practice: wording in consent form / information sheet - 332:11
Anonymising research data32:44
Anonymising qualitative data34:16
In practice: example anonymisation - 135:21
In practice: example anonymisation - 235:47
Managing data access36:42
Can such research data be open ?41:41
Open about data with restricted access43:04
In practice: data with access conditions44:11
In practice: access conditions ReShare - 144:21
In practice: access conditions ReShare - 244:39
In practice: access conditions ReShare - 344:49
In practice: access conditions ReShare - 445:05
Questions ? 45:28